Frequently Asked Questions

General

What devices will Parkinson’s ON work on?

The app is designed for Apple iPhone users on iOS version 14.2 or later and phones running Android version 10 or later

Is there a cost?

The Parkinson’s ON app is free to download and there is no subscription fee.

Do I need internet access to use Parkinson’s ON?

Currently the app requires an internet connection to work

How do I download Parkinson’s ON?

You can download the Parkinson’s ON app for free on Apple App Store or Google Play Store

How do I set up an account on Parkinson’s ON?

When you install the app, you will first be asked ‘Allow Parkinson’s ON to send you notifications?’

Selecting ‘Allow’ will ensure you get notifications, such as when you should take your medication and asking you to do the morning or evening check ins

You will then be given the option to ‘Continue with…’ either your existing Apple, Google or Facebook login or with your email

‘Continuing with email’ will require you to set up a password (which has a minimum length of 10 characters)

By continuing, you are agreeing to the Terms & Conditions and Privacy Policy of Parkinson’s ON

You will then be guided through a step by step set up

Note, there is also the option to ‘Log in’ if you already have an account

How are Parkinson’s UK involved with Parkinson’s ON?

In Feb 2024, Parkinson’s UK announced they were awarding funding to Parkinson’s ON to allow the app to be developed further since its launch at the end of 2023. New features to be delivered in 2024, reflecting the needs of the community, will include a daily log, a diary function and an exportable report, designed to better inform both the person with Parkinson’s and their health care team - all whilst remaining free for users

Is Parkinson’s ON a medical device?

Parkinson's ON is an app designed to empower people to take control of their Parkinson's

It does not provide medical advice, diagnosis or treatment and the Services should not be construed as such advice or diagnosis, nor substitute consultations with qualified healthcare professionals who are familiar with individual medical conditions and needs

If you have any medical questions or concerns, please consult a qualified healthcare provider

What will you do with my data?

We care about data privacy and security - please read our Privacy Policy, which can be viewed at: https://www.parkinsonson.com/privacy

We collect personal information that you voluntarily provide to us and we automatically collect certain information when you visit, use, or navigate the Services

We process your information to provide, improve, and administer our Services, communicate with you, for security and fraud prevention, and to comply with law

Sometimes we may anonymise personal information so that you can no longer be identified from it and use this for our own purposes; sometimes we may group some anonymised information together to give us statistical information for our own purposes

Note, if you choose to ‘Invite someone to your account’ as a ‘support user’ then you are authorising us to share your personal information with the email address you enter, for them to enter information on your behalf and to see your personal information - you can revoke their access at any time

How do I view the Terms & Conditions and Privacy Policy?

The Terms & Conditions can be viewed at: https://www.parkinsonson.com/terms

The Privacy Policy can be viewed at: https://www.parkinsonson.com/privacy

These can be easily accessed from within the app by clicking on the cog symbol at the top right of the home page and clicking on the links at the bottom of that page

Note, Parkinson’s ON is intended for users who are at least 18 years old and persons under the age of 18 are not permitted to use or register for the Services

How do I make a complaint?

In order to resolve a complaint regarding the Services please contact us at hello@parkinsonson.com

Troubleshooting

Where do I get support / help from?

The Parkinson’s ON app has been designed to be user friendly but if you have an issue and cannot find guidance within these FAQs, then please contact us at hello@parkinsonson.com

What should I do if the app freezes or I get a blank screen or I’m stuck on a Parkinson’s ON logo screen?

Crash the app - this can be done by slowly swiping up from the bottom of your screen to about half way up the screen; this will present all the apps you have open as layered tiles; swipe all the way up to the top of your screen to crash Parkinson’s ON

Relaunch the app

What should I do if I need to change my password or I can’t remember my password to log back in?

To change your password, click on the cog symbol at the top right of the home page

Click on the ‘Change password’ button at the bottom of the page and this will take you to a screen where you can change your password

From March 2024: If you can’t remember your password to log back in, then click on the ‘Forgotten password’ button and enter [ your email and your new password ]

Note, the minimum password length is 10 characters

Do I need to do anything if I’m going abroad?

When you installed the Parkinson’s ON app, you would have been asked to select the timezone you are in

When you go abroad, your device will detect that your timezone has changed and the app will respond accordingly, with your medication and check in notifications automatically adjusting to the new timezone - you do not need to do anything yourself

Using Parkinson’s ON

How do I log that I have taken medication?

You can log that you have taken medication by clicking through from the medication notification, which will take you to the ‘Medication’ page

Or you can log that you have taken medication by using the ‘medication reminder’ area of the home page

Or you can log that you have taken medication by navigating to the ‘Medication’ page by using the menu option at the bottom of the home page

You can log that you have taken individual medications by clicking on the green tick next to the medication (or red cross if you have not taken - you will then be asked if you skipped or forgot to take the medication)

Or you can log that you have taken all the medications within a timeslot by clicking on the ‘Taken all’ button

You can edit the time that you took, if you are logging after the event (you cannot log in advance)

The colour coding of the ‘Taken @ HH:MM’ indicates your time adherence - this is in comparison to the intervals between medications versus the intervals that you set up

If you make a mistake logging your medication, you can go back and edit the time after you have logged the medications as taken

How do I log that I have taken extra medication?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

Click on the ‘Any extra medication today?’ button at the bottom of the page

Select your medication from the drop down list, select the time and enter the quantity and click ‘Confirm’

This will log that you have taken extra medication that is not within your scheduled timeslots

How do I see the history of what medications I have taken?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

You can navigate backwards to see historic logging using the arrows

How do I add a medication?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

Click on the ‘Manage’ button at the top right of the ‘Medication’ page and this will take you to the list of medications that you set up originally

Click on the ‘Add medication’ button and this will take you to the list of medications

You can either scroll down the list or search for your medication; click on it and follow the same process that you did at the original set up, by selecting the dosage and then selecting ‘Yes - add this medication’

If you make a mistake, select ‘Go back’

Or if you wish to add a medication that is not shown in the medication list, then select the option ‘Not on the list?’ to add a custom medication (for example, a non Parkinson’s medication)

Repeat this process if you wish to add another medication

If you take the medication regularly, you can then add the medication/s to timeslot/s (see ‘How do I edit a timeslot?’) or if you don’t take the medication regularly, it will be available for you to log as ‘extra medication’ as and when it is needed

How do I add a medication that’s not shown in the list (including non Parkinson’s medication)?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

Click on the ‘Manage’ button at the top right of the ‘Medication’ page and this will take you to your medications

Click on the ‘Add medication’ button and this will take you to the list of medications

If you wish to add a medication that is not shown in the medication list, then select the option ‘Not on the list?’ to add a custom medication (for example, a non Parkinson’s medication)

This will allow you to enter the name of your medication (2nd box) and the dosage (3rd box); this will update the 1st box to show you what will be listed

Click on ‘Next step’ and select the form factor (for example, a round tablet or an oval capsule)

Click on ‘Next step’ and and then, if you’re happy with how the custom medication is presented, select ‘Yes - add this medication’

If you make a mistake, select ‘No - go back and edit’

How do I set up a timeslot?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

Click on the ‘Manage’ button at the top right of the ‘Medication’ page and this will take you to your medications

Note, it is recommended to set up all of your medications before setting up timeslots

Click on the ‘Timeslots’ tab (next to the dark blue ‘Medications’ tab) and this will take you to your timeslots (and show any medication/s that you have added to the timeslot/s)

Click on the ‘Add timeslot’ button

Enter the time you wish to create a new timeslot for using the 24hr format (for example, 14:00 for 2pm)

Click on ‘Next step’ and select the medication/s you wish to add to this timeslot by clicking on the green plus (+) symbol next to the medication (for example, Madopar 100mg/25mg and Rasagiline 1mg)

If you make a mistake with the medication you wish to add to this timeslot, you can remove it by clicking on the red bin next to the medication/s you have previously added

Click on ‘Next step’ and edit the quantity of each medication you wish to add to this timeslot (note, it is pre-populated with quantity 1 for ease of use but this can be edited)

Click on ‘Next step’ and then, if you’re happy with the medication/s you’ve added to this timeslot, select ‘Yes - add this medication’

Or if you need to change something, select ‘No - go back and edit’

Repeat this process if you wish to add another timeslot

How do I get medication alerts?

When you installed the Parkinson’s ON app, you would have been asked ‘Allow Parkinson’s ON to send you notifications?’

If you selected ‘Allow’ you will be getting notifications, such as when you should take your medication/s and asking you to do the morning or evening check ins

If you selected ‘Don’t allow’ when you first installed the app, then you will now need to enable notifications manually in your device settings

In this instance, navigate to your device’s ‘Settings’ and enable ‘notifications’ for Parkinson’s ON

Once enabled, you will receive medication and check in alerts

How do I edit a timeslot?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

Click on the ‘Manage’ button at the top right of the ‘Medication’ page and this will take you to the list of medications that you set up originally

Click on the ‘Timeslots’ tab (next to the dark blue ‘Medications’ tab) and this will take you to the list of timeslots that you set up originally (and show the medication/s you have added to each timeslot)

Click on the ‘Edit this timeslot’ button and you can either change the time if you wish or click ‘Next step’ without changing the time

Select the medication/s you wish to add to or remove from this timeslot by clicking on the green plus (+) symbol next to the medication or the red bin next to the medication/s

Click on ‘Next step’ and edit the quantities of each medication in this timeslot (note, it is pre-populated with quantity 1 for ease of use but this can be edited)

Click on ‘Next step’ and then, if you’re happy with the medication/s now in this timeslot, select ‘Yes - add this medication’

Or if you need to change something, select ‘No - go back and edit’

How do I change my medication?

If you need to add a medication then please follow the steps within ‘How do I add a medication?’

If you take the medication regularly, you can then add the medication/s to timeslot/s (see ‘How do I edit a timeslot?’) or if you don’t take the medication regularly, it will be available for you to log as ‘extra medication’ as and when it is needed

If you need to remove a medication then you must first remove it from all timeslots (see ‘How do I edit a timeslot?’) and then you can delete it from the ‘Medications’ tab

Note, if the dosage of your medication changes, it is recommended to add this as a new medication instead of editing the existing medication to ensure data integrity

How do I access my medication card?

Navigate to the ‘Medication’ page by using the menu option at the bottom of the home page

Click on the ‘See your medication card’ button at the top left of the ‘Medication’ page

This will present your personal medication card which clearly shows you the list of medication/s that you set up and what quantity you have added to your timeslot/s

Note, if you have set up a medication that you have not needed to add to a timeslot (for example, if you dont take it regularly, but only when needed) then the medication will still show on your medication card for completeness

To exit the medication card, click on the X on the top right corner of the card to close the window

How do I update the symptoms that I want to track on the home page?

Navigate to the ‘Symptoms’ page by using the menu option at the bottom of the home page

Click on the ‘Manage’ button at the top right of the ‘Symptoms’ page and this will take you to the list of symptoms

You will see the symptoms that you originally selected to track at the top of the list - if you no longer want to track the symptom, you can remove it by clicking on the red bin (which will show against the symptom/s you originally selected)

If you want to track an additional symptom, select it by clicking on the green cross symbol next to the symptom (for example, Balance or Swallowing)

If you make a mistake with which symptom you wish to track, you can remove it by clicking on the red bin which will show against the symptom/s you have added

Note, this process allows you to quickly track and rate symptoms on the app home page (for those you may want to track regularly) but you can always track and rate any symptoms by using the ‘Symptoms’ area (for those you may want to track less regularly)

How do I see the history of what symptoms I have tracked and rated?

Navigate to the ‘Symptoms’ page by using the menu option at the bottom of the home page

Click on the ‘See history’ tab (next to the dark blue ‘Track symptoms’ tab) and this will show you the symptoms rated on the current day and allow you to navigate backwards to see historic logging using the arrows

How do I see the history of what activities I have logged?

Navigate to the ‘Activity’ page by using the menu option at the bottom of the home page

Click on the ‘See history’ tab (next to the dark blue ‘Track activity’ tab) and this will show you the activities logged on the current day and allow you to navigate backwards to see historic logging using the arrows

How do I add an activity that’s not shown in the activity list?

Navigate to the ‘Activity’ page by using the menu option at the bottom of the home page

Click on the ‘Create custom activity’ button and enter the name of the activity, then click on ‘Create’

If you make a mistake or want to delete the custom activity, you can remove it by clicking on the red bin (which will show against it once you have created it)

How do I see insights from my logging?

Navigate to the ‘Insights’ page either by clicking on the ‘Insights’ button on the home page or clicking on the ‘Go to My Insights’ button that is presented to you after you complete a check in

What does the ‘Medication adherence’ insight show me?

The ‘Medication adherence’ donut chart shows the percentage of medications (those that you have allocated to timeslots) that have been taken

Below the donut chart, the percentage of medications ‘not logged’ or ‘skipped’ is shown, as is a comparison to the previous period

You can toggle between a weekly and monthly view at the top of the chart

The days below the donut chart are colour coded to denote the level of your ‘Medication adherence’ on each individual day of the week or month

You can navigate backwards to see historic logging using the arrows at the side of the chart

What does the ‘On time adherence’ insight show me?

The ‘On time adherence’ pie chart shows the percentage of medications (those that you have allocated to timeslots) that have been taken on time in comparison to the schedule you have set up

You can toggle between a weekly and monthly view at the top of the chart

The days below the pie chart are colour coded to denote the level of your ‘On time adherence’ on each individual day of the week or month

You can navigate backwards to see historic logging using the arrows at the side of the chart

What does the ‘Detail trends’ insight show me?

The ‘Detail trends’ chart shows the daily trend in ratings you have given to the 3 daily check in questions (being sleep quality at morning check in and activity level and general day rating at evening check in)

You can toggle between a weekly and monthly view at the top of the chart

You can navigate backwards to see historic logging using the arrows at the bottom of the chart

How do I complete the morning check in or evening check in?

Either click through from the notification you receive (if you have notifications enabled) or click on the ‘Check In’ button on the home page

The ratings you give to the 3 daily check in questions (being sleep quality at morning check in and activity level and general day rating at evening check in) will be presented on the ‘Detail trends’ chart on the ‘Insights’ page

Navigate to the ‘Insights’ page either by clicking on the ‘Insights’ button on the home page or clicking on the ‘Go to My Insights’ button that is presented to you after you complete a check in

How do I share access to my account with a ’support user’?

Click on the cog symbol at the top right of the home page

Enter the email address of the individual you wish to share access with and this will send them an email, asking them to accept your invitation

Their email will be listed under ‘People with access’ with status ‘Invite pending’ until they have accepted / created their own account

They should then download the app and create their own account - this will allow them to a) see your account and all your entries and b) allow them to enter data on your behalf (including managing and logging medication, rating symptoms and logging activity)

Note, the support user will be able to see the information you provided when you first set up your account (your gender, year of birth, year of diagnosis, timeslots and medications, and any symptoms you selected to track on the home page) and all entries you make

Note, the support user will not receive notifications from the app

How do I remove a ‘support user’?

Click on the cog symbol at the top right of the home page

This will show you the email/s of ‘People with access’ to your account

Click on the ‘Revoke’ button next to the email of the support user you wish to remove and this will remove their access to your account

How do I logout of my account?

Click on the cog symbol at the top right of the home page

Click on the ‘Logout’ button at the bottom of the page

How do I delete my profile?

Click on the cog symbol at the top right of the home page

Click on the ‘Delete my account’ option at the bottom of the page